Although CF is a heartbreaking & frustrating disease, it sure does make you hold value to life and truly understand how very fragile it is.
Tonight a 2 1/2 year old boy lost his life due to CF complications. I am not sure of the complete details, nor have I ever met the family so I dont feel as it is my place to try & explain what exactly happened.... All I know is Bryce only had 2 1/2 years on this earth before CF did the damage that it is known for.
CF rips people apart. It takes children away from their parents. It takes wives away from their husbands, & vice versa. Why are we letting this happen? It's 2013. Why hasn't a cure been found yet? I feel that we are so close to finding one. We just need to fight harder & not take for granted the loved ones around us.
Hugging my little girl so tight tonight. Feeling so blessed that we have Kalydeco & a second chance at life. But also wondering when it's going to be all the other CFer's turns. They are truly the strongest people I've ever met.
We need a cure.
Tonight a 2 1/2 year old boy lost his life due to CF complications. I am not sure of the complete details, nor have I ever met the family so I dont feel as it is my place to try & explain what exactly happened.... All I know is Bryce only had 2 1/2 years on this earth before CF did the damage that it is known for.
CF rips people apart. It takes children away from their parents. It takes wives away from their husbands, & vice versa. Why are we letting this happen? It's 2013. Why hasn't a cure been found yet? I feel that we are so close to finding one. We just need to fight harder & not take for granted the loved ones around us.
Hugging my little girl so tight tonight. Feeling so blessed that we have Kalydeco & a second chance at life. But also wondering when it's going to be all the other CFer's turns. They are truly the strongest people I've ever met.
We need a cure.