I got the idea for this picture from another CFer. I think it is such a good representation of someone living with CF. There is life beyond CF, but CF is still a huge factor.
Thanks to Kalydeco, I have had the pleasure of watching my little girl grow & genuinely feel good. I am not really worried about when or if those treatments & extra CF related routines we do will ever become less. As long as that little girl in the picture still has that same beautiful smile on her face everyday, that's all that matters to me.
Others aren't so lucky though. Kalydeco only works on 4% of the people with CF, & isn't even truly a cure. Just a med showing promising results to the daily life of a CFer.
The girl who took this picture of herself is requesting others to do the same. She wants the picture emailed to her & wants to end up making a collage of pictures like these all together. I'd love to see what other people come up with. Their hobbies, things they love, & items that are just apart of their regular life. Then the picture underneath, showing all your CF items.
Thanks for the idea Jessika!
[email protected]
Thanks to Kalydeco, I have had the pleasure of watching my little girl grow & genuinely feel good. I am not really worried about when or if those treatments & extra CF related routines we do will ever become less. As long as that little girl in the picture still has that same beautiful smile on her face everyday, that's all that matters to me.
Others aren't so lucky though. Kalydeco only works on 4% of the people with CF, & isn't even truly a cure. Just a med showing promising results to the daily life of a CFer.
The girl who took this picture of herself is requesting others to do the same. She wants the picture emailed to her & wants to end up making a collage of pictures like these all together. I'd love to see what other people come up with. Their hobbies, things they love, & items that are just apart of their regular life. Then the picture underneath, showing all your CF items.
Thanks for the idea Jessika!
[email protected]