After 2 months, Lily finally got to reunite with her kindergarten friends & go back to school. She went back on Wednesday and had a great day. I asked her if she learned all kinds of new things or if she already knew everything and of course she said "I already knew everything!" Lol... Silly girl.
I am so proud of her for being such a trooper through out this whole thing. She doesn't realize how strong she is & how much her sassy & positive attitude helps me. She is amazing!
Her last dose of PICC line antibiotics ran last night so we are praying that her body is being taken care of by Kalydeco & will keep her healthy. So far she is great! I can't get over how much energy she has. She has gotten full nights of sleep and no coughing fits since being out of the hospital. Her appetite is awesome too! Today was the 4th day in a row she had Taco Bell. Haha, she's addicted!
Thank you everyone for your continued support and prayers! If you have ever donated to the CF Foundation, I just wanted to say how much it is appreciated. Kalydeco was able to be discovered by donations that you all gave, which is the reason Lily is getting a second chance at life. I am FOREVER grateful!
I am so proud of her for being such a trooper through out this whole thing. She doesn't realize how strong she is & how much her sassy & positive attitude helps me. She is amazing!
Her last dose of PICC line antibiotics ran last night so we are praying that her body is being taken care of by Kalydeco & will keep her healthy. So far she is great! I can't get over how much energy she has. She has gotten full nights of sleep and no coughing fits since being out of the hospital. Her appetite is awesome too! Today was the 4th day in a row she had Taco Bell. Haha, she's addicted!
Thank you everyone for your continued support and prayers! If you have ever donated to the CF Foundation, I just wanted to say how much it is appreciated. Kalydeco was able to be discovered by donations that you all gave, which is the reason Lily is getting a second chance at life. I am FOREVER grateful!